This week I will have my fourth round of chemo.I don’t have cancer. So explaining this treatment has been hard. Deciding to take this route doesn’t make sense to some. And thus, what can already be an overwhelming and isolating option has left me unable to really put words to this current part of my […]

I got the call. Normally when you discharge from the hospital, your Primary Care doctors office calls you within a couple days. When you are in palliative or hospice and you discharge from a hospital stay, a coordinator calls you both to see how you are physically but also asses you overall. Along the way […]

I’m a coffee person. I make a big deal about Jesus. I led worship. I’m a people person.And I love coffee. These are just the Amanda facts that if you’ve spent much time around me in life, you’d have discovered. Last year, when I moved back to West Palm, I didn’t know how long I […]

I’ve said often in the past year or so that “if I had known what I know now, maybe I’d make a different decision.” But when you are walking out a terminal diagnosis with an illness that makes no sense and has very few answers… it is difficult to know how to make a decision. […]

I’m up in the air at the moment, in route to Colorado. Another unplanned “adventure” for which I didn’t even have a ticket booked this time yesterday. I am sitting next to a man who is literally almost 7 feet tall (I asked, he measures in at 6’11” and yes, he does play basketball). His […]

Yesterday it was troponin. The doctor said my labs showed it to be elevated such to indicate a cardiac event or heart attack within the last 72 hours. The thing is… I went into the Emergency Room to get stitches out. They weren’t even supposed to look at my heart. My legs were very swollen, […]

I’ve spent days wanting to share about the big moments up at the Oaks and meeting one of my heroes and a bunch of other truly incredible people and sharing my story with them. But like so many of the other beautiful, bucket list busting memories I’ve experienced over the past few months of this […]

It’s 3 am and I’m laying in a hospital bed. It’s familiar. I’m trying to think how many times I’ve been in the hospital over the past 10 years. Way more than I can count. Over 50 for sure. At least 11 different states as well. There have been years I’ve spent more days on […]