I got the call. Normally when you discharge from the hospital, your Primary Care doctors office calls you within a couple days. When you are in palliative or hospice and you discharge from a hospital stay, a coordinator calls you both to see how you are physically but also asses you overall. Along the way […]

I’ve said often in the past year or so that “if I had known what I know now, maybe I’d make a different decision.” But when you are walking out a terminal diagnosis with an illness that makes no sense and has very few answers… it is difficult to know how to make a decision. […]

I’m up in the air at the moment, in route to Colorado. Another unplanned “adventure” for which I didn’t even have a ticket booked this time yesterday. I am sitting next to a man who is literally almost 7 feet tall (I asked, he measures in at 6’11” and yes, he does play basketball). His […]

I know. I know what you’re thinking. In the last year, it’s been pretty clear. I make a lot of decisions and plans that don’t make a lot of sense. A month or so ago, when I was in the hospital with double COVId pneumonia, several people were surprised to see that I was living […]

I’ve spent days wanting to share about the big moments up at the Oaks and meeting one of my heroes and a bunch of other truly incredible people and sharing my story with them. But like so many of the other beautiful, bucket list busting memories I’ve experienced over the past few months of this […]

The last 10 days have been as much a mental and emotional battle as they have been physically painful. I think my mind is overwhelmed by the weight of navigating the pain of the fractures, the logistics of navigating travel, where I’m living, failing health, and finances. How could I have broken my pelvis? I […]